The University of Michigan Kidney Epidemiology & Cost Center (UM-KECC) carries out epidemiological, clinical, medical outcomes, public policy, and economic research relating to End-Stage Renal Disease (ESRD), Chronic Kidney Disease (CKD), and organ transplantation. Annually, the Center produces the Dialysis Facility Reports, which allow dialysis providers to compare the characteristics of their facility’s patients, patterns of treatment, and patterns in transplantation, hospitalization, and mortality to local and national averages. Beginning in 2010, the distribution of the DFRs shifted from paper-based to electronic-based, via the secure website www.dialysisreports.org. Each facility has designated a Master Account Holder (MAH) who has the ability to access the DFRs and assign access to additional facility-level users. For more information on accessing your facility's DFR or about MAH credentialing, please contact Claire Tetrick at the Network office.
The Dialysis Facility Compare website can help you compare dialysis facilities and choose the one that is right for you. If you are a patient or someone helping a patient make decisions about his or her healthcare, the DFC website can help you...
The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes United States ESRD demographic, cost, hospitalization, and mortality data.
Until 2008, the Centers for Medicare & Medicaid Services (CMS) collected scientifically derived samples of data to produce the Clinical Performance Measures (CPMs) for adult hemodialysis (HD), adult peritoneal dialysis (PD), and pediatric patients.
Since 2008, CMS has relied on the National ESRD Electronic Lab Data (Elab) collection, which provides for calculation of Network-level measures based on 100% of eligible dialysis patients. Similar to the previous CPM data collection, Elab data are collected during the 4th quarter of each year and produce measures in the clinical domains of dialysis adequacy, anemia management, nutrition, and bone management.
The United Network for Organ Sharing (UNOS) collects and manages all data that pertain to the patient waiting list, organ donation and matching, and transplantation occurring on the OPTN, the nation's organ transplant network. National, regional, state, and transplant center data are available.
The Organ Procurement and Transplantation Network (OPTN- http://optn.transplant.hrsa.gov) is the unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984. The act called for the network to be operated by a private, non-profit organization under the federal contract. The OPTN is a unique public-private partnership that links all of the professionals involved in the donation and transplantation system. The primary goals of the OPTN are to:
The Centers for Disease Control & Prevention (CDC) provides a large volume of statistical data on a variety of public health topics, including diabetes, chronic disease indicators, immunization, and heart disease. For dialysis-specific information, visit the CDC's Healthcare Associated Infections (HAIs) in Dialysis Settings web page to learn more about infection surveillance. Also of interest are the Morbidity and Mortality Weekly Reports (MMWR) http://www.cdc.gov/mmwr.
The purpose of Data.gov is to increase public access to high value, machine readable datasets generated by the executive branch of the federal government. Files can be found at www.data.gov.
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