Recognizing that 20% of dialysis patients die each year, coordinated end-of-life care is an essential part of a quality care plan. However, there are many misconceptions about available end-of-life services for kidney patients. Additionally, questions exist as to how to best help patients express their end-of-life treatment desires, how to implement a quality end-of-life and palliative care program in the dialysis unit, and how to meet the educational needs of patients, families, and healthcare professionals.
In order to address these questions, MARC formed the national Kidney End-of-Life Coalition, now the Coalition for Supportive Care of Kidney Patients. The Coalition for Supportive Care of Kidney Patients (CSCKP) is a national organization of renal and palliative care healthcare professionals, patients, and families seeking to transform care delivery so that all patients diagnosed with advanced CKD or ESRD are offered supportive care from the time of diagnosis and are provided with all treatment options, including end-of-life and bereavement care.
Please visit http://www.kidneysupportivecare.org/ for more information about CSCKP and to access a variety of resources for patients, families, and professionals.
Coalition for Supportive Care of Kidney Patients Website
Advance Care Planning Brochure Order Form
Advance Care Planning Brochure (English or Spanish)