Do we have your email?
Click here to sign up for MARC news & updates.
Need
to update facility staff who receive MARC mail?
Click here to submit changes.
|
|
| |
If you are looking for
information on end-of-life care, here are some resources that
may be useful. Be sure to visit the Kidney End-of-Life
Coalition's website at www.kidneyeol.org.
Education
& Training
Module
5: Caring through the End: Final Stage of Chronic Kidney
Disease - This module defines palliative care
and helps participants identify end-of-life issues that
might arise in the facility as well as possible resources
and support.
Recommendations
& Guidelines
The Robert Wood Johnson Foundation's Promoting
Excellence: End-Stage Renal Disease Workgroup Recommendations
to the Field - This report describes the need
for palliative care in the ESRD population and presents
the methods, findings, recommendations, and products of
the Promoting Excellence ESRD Workgroup.
-
Shared Decision-Making in the Appropriate Initiation of
and Withdrawal from Dialysis - The RPA's
second Clinical Practice Guideline presents 9 recommendations
concerning withholding or withdrawing dialysis in adult
patients with either acute renal failure or end-stage
renal disease. Suggested steps for dealing with disruptive
patients are also included. In addition, the document
includes a toolkit in which suggestions for dissemination
and local implementation of the guideline recommendations
are presented.
-
Assessing Decision-Making Capacity by Alvin
Moss, M.D.
-
Core Curriculum on Palliative Care for Nephrologists,
American Journal of Kidney Diseases, 43.1 (Jan
2004): 172-185.
-
Recommendations to Dialysis Units for Addressing End-of-Life
Care in ESRD - eight areas that each dialysis
facility should consider in offering palliative care to
their patients.
-
RPA and ASN Position Statement on Quality Care at the
End of Life
- Chambers EJ, Germain M, Brown E (eds):
Supportive Care for the Renal Patient. Oxford,
Oxford University Press, 2004.
- Campbell, Anne. "Improving retention
and motivation in non-clinical dialysis employees."
Nephrology News & Issues. Jan (2004): 22-27.
- Lynn, Joanne, Marie W. Schall, Casey
Milne, Kevin M. Nolan, Andrea Kabcenell. "Quality
Improvements in End of Life Care: Insights from Two Collaboratives."
Joint Commission Journal on Quality Improvement.
26.5 (May 2000): 254-267.
Advance
Directives
-
Model Policy for DNR Orders in Dialysis Facilities
- developed by the ESRD Peer Workgroup of the Robert Wood
Johnson Foundation Promoting Excellence in End-of-Life
Care Program and endorsed by the RPA/ASN Quality Patient
Care Committee.
State-specific
advance directive documents - provided by
the National Hospice and Palliative Care Organization
(NHPCO).
- 10
Legal Myths about Advance Medical Directives
- specific laws about advance directives and healthcare
proxy, from the American Bar Association's Commission
on Law and Aging.
- Patient
Self Determination Act - get information
on the federal law requiring hospitals, nursing homes,
home health agencies, and HMOs to provide information
on advance directives at the time of admission (from the
American Bar Association's Commission on Law and Aging).
- Five
Wishes - this document, available in print,
video, and DVD (English and Spanish) from Aging with Dignity,
helps you express how you want to be treated if you are
seriously ill and unable to speak for yourself.
- Briggs, Linda A., Karin T. Kirchhoff,
Bernard J. Hammes, Mi-Kyung Song, Elaine R. Colvin. "Patient-centered
advance care planning in special patient populations:
A pilot study." Journal of Professional Nursing.
20.1 (Jan 2004): 47-58.
Advance
Care Planning: For the Dialysis Patient and their Family
- This brochure was developed by the Mid-Atlantic Renal
Coalition and the Academy for Educational Development,
with funding by CMS, to serve as a guide for patients
and their families as they discuss options for future
care. If you would like copies of the brochure, download
an order form
for the Advance Care Planning brochure and submit
it to the Network office.
Hospice
& Palliative Care
DyingWell.org
- resources for people facing life-limiting illness, their
families, and their professional caregivers.
National
Hospice and Palliative Care Organization (NHPCO)
- the oldest and largest nonprofit membership organization
representing hospice and palliative care programs and professionals
in the United States. The organization is committed to improving
end-of-life care and expanding access to hospice care with
the goal of profoundly enhancing quality of life for people
dying in America and their loved ones.
Hospice
Foundation of America - provides leadership
in the development and application of hospice and its philosophy
of care with the goal of enhancing the American health care
system and the role of hospice within it.
Medicare
Hospice Benefits - this is the official government
publication for Medicare benefits with important information
about eligibility, benefits, locating a hospice program,
and more.
- Brody, Jane E. "Facing Up to the
Inevitable, in Search of a Good Death." The New
York Times. 30 Dec 2003. 2 Nov 2004 http://www.nytimes.com.
|
 |
|
|
|
