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Network 5 Pediatric Nephrology Providers
Upcoming Events in Network 5
Additional Resources
As of September, 2008, there were approximately 265 patients, ages 0 to 24, with End Stage Renal Disease (ESRD) receiving dialysis in Network 5. These patients experience distinctive etiologies and treatment modalities. For example, in 2008, data collected through the Department of Health and Human Services Centers for Medicare & Medicaid Services Medical Evidence Report, show that glomerulonephritis in this age group is the leading cause of chronic kidney failure. This primary cause is followed by cystic, hereditary, and congenital conditions; diabetes with renal manifestations; neoplasms; interstitial nephritis/pyelonepritis; and unknown/uncertain causes. The majority of pediatric patients, defined as those less than 19 years of age, utilize continuous cycler peritoneal dialysis (CCPD). In this age group, two (2) of three (3) patients receive pre-ESRD care from a nephrologist; however a catheter access rather than arteriovenous fistula (AVF) is more likely to be used at dialysis initiation.
Network 5 is partnering with pediatric nephrologists and other healthcare professionals to develop a regional pediatric provider quality initiative. The initiative is aimed at identifying the specific needs of pediatric patients and ways to improve outcomes for this segment of the ESRD population.
For additional information on the pediatric nephrology initiative, contact Edie Frankovich, MARC Quality Improvement Coordinator.
Pediatric Nephrology Specialty Providers in ESRD Network 5
Children's National Medical Center - Washington, DC
Walter Reed Army Medical Center - Washington, DC
Johns Hopkins Children's Center - Baltimore, MD
University of Maryland Hospital for Children - Baltimore , Maryland
National Naval Medical Center - Bethesda, MD
Virginia Commonwealth University's Children's Medical Center - Richmond, VA
Children's Hospital of the King's Daughters - Norfolk, VA
University of Virginia Health System - Charlottesville, VA
Inova Fairfax Hospital for Children - Fairfax, VA
West Virginia University Hospital - Morgantown, WV
Upcoming Events in Network 5
No upcoming events at this time--check back often for updates!
Additional Resources
Presentations
Network 5 Pediatric Population: A Look at the ESRD Data (PDF) presented by MARC Staff at the Mid-Atlantic Pediatric Nephrology Luncheon, November 18, 2008
FDA Alerts specific to pediatric nephrology patient population
Teenager/adult focus
http://www.esrdnet5.org/fda.asp
http://www.esrdnet5.org/whatsnew.asp#Informed
Other Resources
Pediatric Dialysis Programs in the United States (developed by the Heartland Kidney Network (ESRD Network 12) and modified by MARC)
Pediatric Pain Assessment Tool developed by the American Nephrology Nurses' Association (ANNA) Pediatric Special Interest Group (SIG)
Council of Nephrology Social Workers (CNSW) of National Kidney Foundation's Pediatric Toolkit includes downloadable modules addressing essentials, assessment, grief and loss as well as insurance.
American Society of Pediatric Nephrology
Promotes optimal care for children with kidney disease through advocacy, education and research. Provides many additional internet resources for parents of children with chronic Kidney disease (CKD) including sites for disease specific web sites and email discussion groups for patients.
National Kidney Foundation
This site provides educational materials, services and community resources for both patients and professionals.
NFK Clinical Practice Guidelines
Multiple Guideline topics range from vascular access for dialysis patients to nutrition to assist the kidney community, individual patients and medical professionals make better informed decisions about improving care.
American Association of Kidney Patients
Provides perspective in kidney disease from patients and caregivers as well as how to become an advocate for people with kidney disease.
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports basic and clinical research on many of the most serious diseases affecting public health and provides resources specific for children with kidney disease
The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States.
National Institute of Health (NIH) part of U.S. Department of Health and Human services providing reliable health topic information and the primary federal a gency for conducting and supporting medical research:
U.S. Food and Drug Administration (FDA) provides safety information on drugs and other FDA-regulated products such as medical devices. The FDA protects and promotes public health by posting information about recalls, inspections results from agency-regulated facilities, and convenes public meetings with outside experts for advice on making key public health decisions.
Best Pharmaceuticals for Children Act of 2007
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